So family members shouldn't take their loved one’s behaviors personally. You’ve probably heard of Alzheimer's disease. The average time between diagnosis and death is between four and ten years. All moderators are available to be contacted about any group issue or concern. Posts that discuss sexuality as related to FTD are requested to be non-explicit. Behaviours exhibited by people with FTD can be unpredictable and distressing. With this blog, I am hoping to offer information and insight into dealing with FTD, whether you have the disease, are a caregiver for someone who does or if you know or love someone who has the disease and want to learn more about it. Coping with FTD can be scary, frustrating, and embarrassing for the patient and family members. Long-Term Care for People with FTD For many caregivers, there comes a point when they can no longer take care of the person with a frontotemporal disorder without help. The condition may last from three to 17 years before death, with an average duration of eight years after diagnosis. I hope this blog helps you to understand. Tips for managing aggressive behaviour in FTD . It is important, however, to understand that the behaviour exhibited by people with FTD is a result of the disease process in the brain as FTD … Some symptoms can’t be controlled. The NY Times recent article here is a pretty good read. The grieving begins long before physical death. Depending on the location of the damage, the disorder causes changes in social behavior, personality, and/or loss of language skills. Frontotemporal dementia (FTD) is a type of dementia that happens because of damage to the frontal and temporal lobes of your brain. If FTD is diagnosed early in the course of the disease, doctors can prescribe medications and help families prepare and cope with symptoms. Such groups allow caregivers to learn coping strategies and share feelings with others in the same position. Families need to care for their own well-being, while making sure that their loved one is treated with dignity and respect. And of course there are the articles about the spouses and children that are coping with the disease. Please know that in order to maintain a healthy, honest, and open dialogue this information will be shared amongst moderators. The archives will be open to all members to read. Putting One Foot In Front of the Other is author Nancy Carlson’s candid blog post about coping with her husband’s diagnosis of frontotemporal degeneration (FTD). Fronto Temporal Lobe Degeneration - A different kind of dementia, most often called FTD. Added to the pain of dealing with an untreatable, incurable illness is the loss of person, insight, and empathy for others. 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